Who are we?
We are the Epidemiology & Cancer Statistics Group (ECSG), based in the Department of Health Sciences at the University of York. ECSG's staff includes researchers, nurses, data analysts and administrators. Together, the team invite people to join the study, collect, process and analyse data, and write up findings, which are then shared with clinical staff, other researchers, patients, relatives and the public. ECSG has a Patient Partnership which ensures patients and families have the opportunity to shape and design our studies and research questions, to ensure that we only carry out research that is relevant and important.
What do we do?
We collect data and samples from all patients with blood cancers and blood disorders across the YHHN area. This is used to answer research questions such as why such diseases develop, how people respond to treatment and if new treatments make a difference. For more information, see Key Activities.
Who do we include?
All patients in the study area are included. No-one is excluded on the basis of protected characteristics (age, sex, ethnicity, gender, socio-economic status or any other factor). Since 2004, around 55,000 people have been included, increasing by around 2,500 each year. As YHHN's population (around 4 million people) is similar to that of the UK as a whole, our findings generally reflect the experiences of people with blood cancer and blood disorders across this area.
Further information, including statistics, can be found on the Haematological Malignancy Research Network website.
To view Study Paperwork, Frequently Asked Questions (FAQs) and Data Protection issues, click the links below.