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Patient experiences of chronic myeloid leukaemia (CML)

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New treatments mean that chronic myeloid leukaemia (CML) is a disease that can now be successfully managed (often for many years), with tablets.  Despite this, a study by YHHN researchers has shown that people with CML who live in poorer areas have worse survival than those living in more affluent areas.  The reasons for this are unclear, but may include what other illnesses patients have, how they generally manage their health, and whether or not they take their tablets.

This YHHN study aims to find out more about these issues by exploring the experiences of patients living with CML.  It also aims to understand what it is like for the doctors and nurses who provide care for patients with CML and their families.  It includes discussions with around 20 patients (and their relatives), and 20 clinical staff across the YHHN area.  A questionnaire survey will also be sent to the patients with CML who have agreed we can contact them.  We hope that the findings from this study will help doctors and nurses to support their patients, so that survival differences no longer exist.

Study paperwork

Downloadable copies of our participant information leaflets and consent forms

View study paperwork

Frequently asked questions

Answers to the most common questions study participants ask about taking part in this study

View frequently asked questions